Yesterday Elaine told me that they were planning on doing surgery on the pancreas in 2 to 4 weeks to remove the useless tissue. I don’t know any more details than that, but I hope to find out more soon. I’m hoping that this will turn around, or that he will at least be able to drink and eat before then because he is going crazy lying in bed with no food or water.
Currently he is so agitated with being in bed that they are drugging him quite a bit to try and get him to relax. He’s constantly trying to get up, remove his feeding tube (he’s done this 3 times in 3 days), and begging for something to eat and drink. I feel so useless with him being so miserable.
I just got news that he’s back in ICU on the 2nd floor -room 285. Elaine said that Manford left her a message that he continues to pull the feeding tube out, so they moved him up there. I’ll update when I know more.
Ugh! Keep praying!
Love,
Krystal
Poor Trey! I can’t even begin to imagine how distressing the feeding tube would be, not to mention the inability to eat or drink- I think that would drive anyone crazy.
I updated the room# on the emailing and visiting pages on this site. Am definitely(!) looking forward to changing it back to a non-ICU room# soon! Please tell the boy that we continue to think of him daily. <3
So, why the delay of 2-4 weeks? Can’t they see this misery? And not even any water to drink? Why? I guess I don’t know all the details of the condition, but that seems automatically crazy-making for anyone. Even if he has to have an IV, does the feeding tube have to be in all the time? Why not just feed him, then take it out? Why can’t they let him take a wheelchair ride or something to get him out of the bed? I feel for the guy. I wish I was closer to be of more help. Hang in there Krystal and Mom and everyone…much love.
Geez! Is there anything we can take him–books–anything? It seems like something other than focusing on a dry mouth and uncomfortable feeding tube would make it somewhat more bearable. A little better, at least, if nothing else.
I saw Trey yesterday (Friday) and he was so much more comfortable, and finally getting some good rest. The nurse let me feed him ice chips and let him drink a cup of water- that made him so happy! I also put some blistex on his lips and lotioned his hands and arms, which made him smile.
The feeding tube goes down his nose and bypasses his stomach and goes directly into his small intestines. This is being done to keep the pancreas from being activated, which would happen if anything went into his stomach. They are doing this so that his pancreas doesn’t have to work at all and can hopefully begin the healing process to prepare him for surgery. This is what his dad told me to help clarify our confused minds:) I was wondering too why they weren’t doing surgery sooner and why they won’t let him eat- now it makes sense. I think bringing in books or just stopping by to let him know how much we all love him will be a huge help in keeping his spirits up and speeding up his recovery!
Thanks to all of you for loving Trey and caring about him so much- he has been one of my closest friends for 23 years! Please also keep his parents in your prayers during this long and exhausting journey!
Hi, interest post. I’ll write you later about few questions!
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