For Trey

Hello all,

First of all, I am so glad that everyone has become acquainted with the site. Please be sure to donate to Trey’s medical expenses if you’ve got some spare change.

As far as I know, Trey does have gangrene (or as it is called necrosis), and it is not the fluid that was tested as negative, it was the pancreas that was tested. I’ve posted some information on pancreatic necrosis below. So, it is good that he does not have “infected pancreatic necrosis,” but I do believe that he still has sterile pancreatic necrosis. I could be wrong, but I will talk to his dad tomorrow to confirm. He was a Navy corpman, so he usually gives me the “straight talk.” Believe me, I hope I’m wrong!!!

He is alert, which I posted yesterday, and the only other news I have heard is that he might not have to go through surgery, but as I do not know exactly what is behind this, I wasn’t going to post it, but I just want everyone to know that it is probably not completely gone or less critical than before, so please keep praying and sending your love. Things are looking up, though, so don’t take me as Debbie Downer.

Also, Trey’s friend, Brent, has purchased an ipod for Trey, and he has already downloaded Trey’s top 15 albums from his facebook site. Once Brent comes into town, I will show Elaine how to upload to the ipod using Trey’s iTunes library, so please let me know if there is something you think he’ll want that he doesn’t already have. I will include a Buffy song, Aaron, as I have the soundtrack. :)

Also, if you plan to visit him, he gets very agitated when there are people standing around the bed, so try to go in one at a time, and possibly sit and talk to him rather than stand bedside. When he gets agitated, he starts breathing quickly and his pulse goes up, so we need to keep him as calm as possible.

Here is the information that I know about Pancreatic Necrosis, which seems to agree with both Jodphur’s (sp?) and Dr. Hooker’s information/advice (I will never get over that hooker name!). If I am wrong, I will update ASAP tommorrow, but I should let you know that I have a “job” tomorrow, working for my uncle from 8-2. It will be thing I’ve done for money since December. I’ll be at the hospital after that and will crack the case of the mysterious gangrene.

Love to you all (and forgive me for being cooky)

Krystal

Pancreatic Necrosis

One or more CT or MRI scans will be necessary to assess the state of the pancreas.

There may be severe death of the tissue (necrosis) of the pancreas or tissue surrounding the pancreas. It is common to see one or more acute fluid collections in the abdomen. These are usually quite harmless and disappear without specifi treatment. 

Only the CT or MRI can reliably show whether there is pancreatic necrosis (or gangrene of the pancreas). This usually does not full appear until a week or so after the start of the illness.

If there is necrosis it is important to know whether this is infected (called infected pancreatic necrosis) or not infected (also called sterile pancreatic necrosis). 

Infected pancreatic necrosis is similar to wet gangrene (and needs urgent removal) and sterile pancreatic necrosis is similar to dry gangrene (and usually improves without specific removal).

Last night’s update from Elaine:

“He is aware!!! Today the lad was nodding his head in answers to questions. He is NOT happy about the tube down his throat. In case you haven’t seen his website http:treythecoho.net/ I will tell you what I know. The fluid in is abdomen was negative for infection. There is NO gangrene on his pancreas.. It is still bad off however. Surgery is still indicated. It will just be later when they get him off the vent. Could be weeks before they do surgery and until then he stays in the ICU. They prescribed a diuretic and the fluid is flying out of him. This hospital has done so much for him in such a short time. I guess I have to shut up about the whiz kid doc’s. They REALLY do know their stuff.”

Not out of the woods entirely, but way better news than we’ve had, eh?

Much love,

Aaron

Things look better. Culture was negative. They’re waiting to decide on when they will do surgery. They’ll probably decide within 2 weeks- depending on his status and looking to see how much it can heal itself. There will still be LOTS of time recovering (Possibly a year). And he’s not out of the woods yet, but it’s better news than had the necrosis been full of bacteria.

Today he’s slightly alert; for the first time he really saw me!! I can’t tell you how good that feels. So they’re working on weening him off of the sedation and vent- hopefully in the next couple of days.

Keep praying.
Love to all,
Krystal

PS. Sent from my iPhone so forgive the mistakes and jumpiness

Just wanted to recap everything that’s been going on and to clear up any possible misinformation…

Recap from Krystal’s FB page:

Trey is in ICU.  He’s been in since the 13th [of April].  He is in critical condition with pancreatitis.  His pancreas is gangrene, and he will probably be undergoing surgery this week.  He is sedated and on a vent.  After 11 days of high fever, blood pressure, and heart rate, his stats are slightly better.  

Where Trey is Located

Trey is at Dallas Presbyterian Hospital in ICU Room 381 (cur. 03/28).  

Hospital Map/Directions

Here is a link to Maps and Directions for the hospital.

Send a Message to Trey

Dallas Presby offers an “Email a Patient” service.   If you’d like to send Trey a message by email that will be delivered by hospital staff, click here.  Since he’s not really in a position to read messages at this time, I’m sure a nurse or one of Trey’s visitors will read him any messages sent to his room.

Donations

Trey does not have health insurance so if you’d like to make a donation to help defray some of the costs, please feel free to do so at the top right hand corner of this website. 

Music for Trey

Because Trey is essentially in an “induced coma” at this time, it has been suggested that playing music might be comforting to him.   Jesse has kindly offered to collect any music mixes you’d like to create and either burn them to CD or load them to an iPod to bring in to play in Trey’s room.    

If you would like to make a music mix for Trey: 

1. gather all the MP3s you want to mix
2. save them in a folder in the order you want them
3. zip the folder
4. use a program like senduit or fileurls, 
   1. upload the .zip fils
   2. set the time to 7 days so Jesse will have time to download it
   3. have it sent to Jesse’s email.

Sending love and healing thoughts Trey’s way,
stacey

Trey seems good after the move. He’s all set up, and he got a shave. His fever, etc. were pretty good. When I left at 6:30, he was a “little” more aware and was breathing faster than the vent, but I think he’s probably resting better now that we’re gone and she upped the sedation.

The doctor is probably going to let us know about the culture and surgery (like if, what kind, or when they’ll do it) in the morn.

I’ll let you know what I find out.

Love for Trey,
Krystal

As far as I know there is no surgery scheduled today. I’m on my way to see Trey now and will update you all when I know something.

krystal

It’s 10am and Trey is being moved to Dallas Presby for surgery. We’ve been told through the Grapevine that he’ll be in ICU room 381. Here’s a quick map (that might be wrong) from google for anyone who can go to see him.

google map

Hey Trey!  We’re all thinkin’ of ya!

Today Trey was given blood because he was anemic. His fever & pulse were up a little from yesterday, but overall he seemed as good as yesterday.

They are going to move him to Dallas Presby as soon as there is a bed, and they will probably do surgery on the pancreas. The situation is grave, but he is a fighter. Keep him in your thoughts, and I’ll update as soon as I know something.

Love to you all,
Krystal

Darin had the brilliant idea to have a mailing list attached to the site. I’ve taken the liberty of adding everyone in the current email thread. If there are any email addresses of people who you think would like to be notified of Trey’s condition, go to the site and put their email in the subscription space on the right. It’s just below the donations.

Also, Krystal’s mom said that some families put iPods on the patience with uplifting music. I think we should do this. Audio alone seems to be a very quick easy thing for us to do. If you’d like to record something, please do. If you know of any music he likes, please rip it and get it to us. Krystal is going to try to get me some of his cds, and if you like you can call my cellphone and leave a message for trey in the form of a voicemail. I can get the audio of of it easy. It’d probably be best to text me first and let me know to ignore the ringing. :)

940-312-3725

Again, anyone can make updates to this site, I’ve shown Krystal how to via her iPhone, and I hope this helps with keeping us up to date.